The event was organised by the Szoradi family from Meltham after three-year-old William Szoradi was diagnosed with Marfans Syndrome.
Once they received the diagnosis the decided to raise money for the Marfan and have so far raised more than PS2,200 - including PS850 from the fun day.
I recently saw in clinic a Marfans
syndrome patient (not in the flush of youth) who had recently had a lensectomy.
Anterior chamber intraocular lens placement after pars plana lensectomy in pediatric Marfans
Spontaneous Intracranial Hypotension is a syndrome involving reduced intracranial pressure secondary to a dural tear which occurs mostly due to connective tissue disorders such as Marfans Syndrome, and Ehler Danlos Syndrome.
Keywords: Intracranial hypotension, Marfans syndrome, Dural tears, Orthostatic headache, Cranial MR imaging.
Her son Stuart died seven years ago aged 20 after battling Marfans
Syndrome and the family have been fundraising for the Marfans
Family requests donations be made to the National Marfans
Foundation, 22 Manhasset Avenue, Port Washington, New York 11050.
Exactly which syndrome your doctors are considering is difficult to judge, but I wonder if it may have been Marfans
Brave Molly suffers from a genetic condition known as Marfans
Syndrome and has a steel bar permanently fitted to relieve pressure on her lungs and assist her spinal development as she grows.
Ten-year-old Molly suffers from a genetic condition known as Marfans
Syndrome and has a steel bar permanently fitted to relieve the pressure on her lungs and assist her spinal development as she grows.
A 53-year-old Caucasian woman was diagnosed in late childhood with Marfan
syndrome according to characteristic skeletal features and bilateral lens dislocation.