An MP has welcomed the offer of a parliamentary debate over a new drug for a rare muscle-wasting disease after it emerged one of her constituents may not be eligible for treatment.
Award winners were selected by Muscular Dystrophy UK's Scottish Council in recognition of people who have shown fantastic commitment to help beat muscle-wasting conditions.
We know only too well the importance of raising awareness of this genetic muscle-wasting disease after our son, Hadi, who will be two in September, was diagnosed with SMA Type One at just eight weeks old.
She's even learned to cope with Freidreich's ataxia, a muscle-wasting condition which causes progressive damage to the nervous system, and which she was diagnosed with when she was 16.
Such an understanding is urgently needed, as no treatments are yet available for muscular dystrophies and muscle-wasting disorders," stated Alessandra Sacco, Ph.D., associate professor in the Development, Aging, and Regeneration Program at SBP and senior author of the study.
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