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11, 2015 /PRNewswire-USNewswire/ -- Pediatric oncology researchers have pinpointed a crucial change in a single DNA base that both predisposes children to an aggressive form of the childhood cancer neuroblastoma and makes the disease progress once tumors form.
With such a high relapse rate for neuroblastoma, the family know that even if Frankie pulls through, he has an 80% chance of relapsing before he reaches his fifth birthday.
Neuroblastoma is an aggressive childhood cancer that occurs in children less than 6 years of age.
Readers took to the Daily Post's Facebook page to voice their concern over the way neuroblastoma is being portrayed after watching the progress of the character Hope Stape.
The fund is helping to fund research at Birmingham University into neuroblastoma - which affects fewer than 100 children in the UK each year - and also provide support for children battling neuroblastoma both currently and relapsed.
A 26-year-old female, who as a child had a neuroblastoma, presented with gross hematuria.
Helen said: "Jane had been working within the children's cancer field, specialising in neuroblastoma, for a number of years, and after listening to her discuss her research I immediately signed up as one of her project students.
Backed by the Neuroblastoma Children's Cancer Alliance UK she has helped raise PS67,000 for children with the disease.
Her parents Angela and Stewart set up The Amelia-Mae Neuroblastoma Foundation following her death to generate funds for research, support other families and to raise awareness.
There has to be a case for making funding available for trials in places such as the US where there are real advances being made on illnesses like Neuroblastoma.
Neuroblastoma is the most common childhood tumour occurring outside the brain.
Neuroblastoma is the most common cancer to strike infants, and has the lowest survival rate of all childhood cancers.