The organizers even reserved a parking space out front for the ultrarare
Tucker--you know, like the car was about to pull up any minute--but it turned out to be a tiny toy car, not the real thing.
The approval of MEPSEVII is a pivotal moment for Ultragenyx and for patients suffering from ultrarare
genetic diseases for which the investment and development of treatments has not happened yet," said Emil D.
When dealing with ultrarare
diseases you have to make the most of every example.
imported breeds: Ayam Cemani, Cream Legbar, Swedish Flower Hens, Bielefelder, Marans, Isbar, Barbezieux, Bresse, Sulmtaler, Spitzhauben, Olandsk Dwarf, Orust, Barnevelder, Merlerault, Niederrheiner, Marsh Daisy, Altsteirer, East Frisian Gull, Lyonaisse, Malines, Pavlovskaya, Queen Silvia, Swedish Black Hen, Sussex, Twentse, Lavender Wyandotte, Yamato Gunkei.
Peter Hellman's In Vino Duplicitas is a heady, intoxicating book that shines a light on the esoteric and intriguing world of ultrarare
, ultrafine wines that can cost more per bottle than a car or even a house.
The super valuable example would be the ultrarare
, iconic Apple 1 microcomputer.
Her family had thought the 14-yearold was suffering from norovirus but now believe she died from an ultrarare
infection called toxic shock syndrome - which affects just 40 people a year in the UK.
The biggest shock of all is that Gordon and I have each been offered pounds 2,000 for a copy of the Dinos' ultrarare
Fingers & Thumbs/Mellow Yellow single which is being described as the rarest record ever (neither of us actually has copies of it by the way though we do have a photograph of one
April: The Countryside Council for Wales says it is considering designating threatened Llanishen reservoir as a Site of Special Scientific Interest - which would effectively save it from the threat of development - after ultrarare
waxcap fungi is found on its banks.
manuscript titled Gregory I, Saint and Pope, which is a remarkable survival of two 14th Century Franciscan texts in an early Italian blind-stamped binding, recently went under the hammer at a specialist auction.
That's because the brave tot, from Carrickmacross, Co Monaghan, is the third child in Ireland to be struck down by deadly Batten's disease, an ultrarare
condition that will slowly paralyse, blind and eventually kill her.
A couple of weeks ago I took the ultrarare
ZX80 by Sinclair on to GMTV.